We met the DeCosta’s at Six West the stem cell transplant unit at Childen’s Hospital Boston back in September 2004.
I received this article today from The Royal Gazette a newspaper from Bermuda.
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Bermudian to be Jimmy Fund hero By Elizabeth Roberts
A boy from Bermuda who suffers from a severe immune deficiency illness is to feature as a ‘hero’ of the Boston Marathon Jimmy Fund Walk.
Three-year-old Ryan David DeCosta had to make several trips to Boston for treatment at the Jimmy Fund Clinic at the Dana-Farber Cancer Institute before his family relocated from Bermuda to Massachusetts to continue his treatment.
Ryan was diagnosed in 2003 with SCIDS, a severe immune deficiency that has required chemotherapy treatment and two bone marrow transplants.
According to his family, the treatments have helped him grow into a typical three-year-old who loves playing with Lego and cooking imaginary food with his toy kitchen set.
“He’s a fighter. He’s doing extremely well, and we are so grateful he is being treated at the Jimmy Fund Clinic,” said his mother, Debbie DeCosta.
On September 17, Ryan will be one of more than two dozen Jimmy Fund patients who will be featured as ‘Heroes’ of the Boston Marathon Jimmy Fund. This means his photograph will be posted on a mile marker located along the 26.2-mile route from Hopkinton to Boston.
Over its 17-year history, the event has contributed more than $40 million to support cancer research and care at the world-renowned Dana-Farber Cancer Institute.
This year more than 6,000 walkers are expected to participate to raise more than $4.75 million. Among the walkers will be a team participating in Ryan’s honour.
To register for the event online, visit the Jimmy Fund Walk site at www.jimmyfundwalk.org.
Last year, a team from local law firm Mello Jones and Martin took part in the walk and raised $74,594 towards cancer research.
The firm decided to send a team because the the cause hits especially close to home for the firm, who have family members, co-workers and friends battling the disease.
Half of the money raised by MJM went to general cancer research and the other half went to research of the disease histiocytosis. MJM Partner Juliana Snelling took part in the walk in support of her two-year-old son, Jude, who battles a form of the disease, known as Langerhans cell Histiocytosis (LCH).

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