Resources


Foundations

The Jeffrey Modell Foundation

Immune Deficiency Foundation

National Foundation for Ectodermal Dysplasias


Boston Children’s Hospital Publications

Stem cell research: a father’s story by Andres Trevino
Thriving Boston Children’s Hospital’s pediatric health blog

Stem cell research: a father’s story in his own words by Andres Trevino
Children’s News

Sprit of Giving – Sister Savior (pdf) by Kate Kruschwitz
Spirit of Giving

All for one by Matthew Cyr
Dream Magazine


Interviews

How Andy Treviño’s life was saved by his sister! by Evelyn Reyes
Exhale Lifestyle Magazine

Daughter’s Birth Helps Save Life of Sudbury Family’s Son by Robert Fucci
Sudbury Patch

Tener un bebe para salvar a otro por Norma Mora
Babycenter

Embryonic Stem Cell Controversy by Betty Rollin
PBS – Religion & Ethics

Andy’s Story – The Lifesaving Potential of Sibling Cord Blood
Viacord

Padres luchan por salvar a su hijo (video) por Nayeli Chavez
Primer Impacto – Univision

We Found Nemo
Jeffrey Modell Foundation

Andy Trevino Story
National Foundation of Ectodermal Displasias

Andy & Sofia: A Lesson in Health, Life and Hope (pdf page 8) by J. Doug Gill
Immune Deficiency Foundation

Little Lifesaver reported by Juli Auclair, producer Christina Mattingly
NBC News Boston

Boston establishes orphan disease center by Ally Donnelly
NECN Boston


Medical Journal Publications about Andy

Finding Nemo: genetic disorders of NF-kB activation (PDF) by Jordan S. Orange and Raif S. Geha

Deficient natural killer cell cytotoxicity in patients with IKK-y/NEMO mutations (PDF) by Jordan S. Orange et al.

The Presentation and Natural History of Immunodeficiency due to NFkB Essential Modulator Mutation (PDF) by Jordan S. Orange et al.

Allogenic transplantation successfully corrects immune defects, but not susceptibility to colitis, in a patient with nuclear factor-kappaB essential modulatordeficiency. by Pai SY et al.

Derivation of human embryonic stem cells with NEMO deficiency, Guan, X., et al., Stem Cell Res. (2012), doi:10.1016/j.scr.2011.12.007