Organization for ‘promoting useful knowledge’ honors Dr. Jordan Orange IMAGE: Jordan S. Orange, M.D., Ph.D., is a pediatric immunologist at the Children’s Hospital of Philadelphia. Click here for more information. A pediatric immunologist at The Children’s Hospital of Philadelphia has received a prestigious annual award from the American Philosophical Society, an organization founded in 1743 by…
Family & Friends
Jordan Orange Awarded APS Daland Prize
Dr. Jordan Orange is the recipient of the American Philosophical Society 2009 Judson Daland Prize. The Daland Prize recognizes outstanding achievement in patient-oriented research. The prize will be awarded at the meeting of the American Philosophical Society in November 2009. The Society reserves the right to award a shared prize. The American Philosophical Society, the oldest learned…
Asking for positive thoughts and prayers for my mother Marilu
Diagnosis: Non Hodgkins Lymphoma Treatment: Bone marrow stem cell translplant, the mini version with 4 days of chemo. Donor: Her sister Tere. Hospital: Dana Farber Cancer Institute / Brigham and Womens Hospital Boston She will receive new cells tomorrow 02/25 Positive thoughts and prayers welcome. My Dad is keeping a blog at http://3vino.blogspot.com Positive thoughts…
Hope for Henry
Allen Goldberg and Laurie Strongin are PGD pioneers and I’ve been following Allen’s blog for years. Hope for Henry Video from Allen Goldberg on Vimeo. This video shows the important work of the Hope for Henry Foundation, a national organization headquartered in Washington, DC that focuses on improving the quality of life for children facing…
Prayers for Justin
From Justin’s Mom: Please continue to pray for Justin. That he will not find GVHD, and no more pain. Who is Justin?Justin Cilia is an 8 year old boy. Who underwent transplant on June 22nd. He has been sick since he was six weeks old. He has had a few very serious infections. He has…
Simon & JT
NEMO – 72 cases worldwide From Simon’s Mom blog: This is no way for a 3 year old active boy to live. It pains our hearts. Our docs are working with our Washington (NIH) and Philadelphia (NEMO) expert docs to see if there is something else or another drug that might do less harm and…
Vote for Allen Goldberg
http://men.style.com/gq/features/moty/allengoldberg Nominated by: Laurie Strongin, Washington, DC “Allen is someone making the world better for seriously ill children. This started when our son, Henry, came into the world in 1995. Henry brought with him a winning smile, a zest for life, and a rare disease, Fanconi Anemia (FA). Allen then became a one-man make-a-wish foundation,…
Rhys 365 days later
Taken rom Rhys Dad Blog. I knew Ward 23 Newcastle was the ‘last chance saloon’ as it is for all those kids. And was not a dignified death, however where there is life there is hope, and I believed in the Prof and Mario,, but most of all I believed in Rhys.So we proceeded, I…
Rhys is home!
Bubble wrapped boy returns home Jul 13, 2008 by Nathan Bevan, Wales On Sunday HE looks like any other seven-year-old with a happy-go-lucky gap-toothed grin. But Rhys Harris, from Newbridge, has a special reason for such a big smile. He’s back home in Wales safe and well after almost a year away battling a rare…
Boy in the bubble can play in the park again
Boy in the bubble can play in the park again Jun 12 2008 by Abbie Wightwick, South Wales Echo He couldn’t even have a hug from his mum for fear of infection, but after a lifesaving bone marrow transplant at Newcastle General Hospital little Rhys Harris is on the mend. Abbie Wightwick finds the family is now…