From Justin’s Mom:
Please continue to pray for Justin. That he will not find GVHD, and no more pain.
Who is Justin?
Justin Cilia is an 8 year old boy. Who underwent transplant on June 22nd. He has been sick since he was six weeks old. He has had a few very serious infections. He has been in and out of the hospital on numerous occasions. He was diagnosed in 2002 with an immune deficiency. He started gammaglobulin infusions a.k.a. IVIG in October of 2002. He has received IVIG monthly at CPMC. It was not until about two years ago that Justin’s condition continued to get worse. He was diagnosed with auto-immune hemolytic anemia. He was given Rituxan to treat the disease. This was after much reseach with other Dr. The next year he developed a micro-bacteria infection that but him in the hospital for a few months. He had treatment of antibiotics for over 6 months. That is when we decided to contact Dr. Bleesing at Childrens’ Hospital. After we met with Dr. Bleesing in June 2006. He did a lot of additional testing on Justin. He also contacted the NIH in Baltimore. That is when Justin was Diagnosed with NEMO. The only cure for NEMO is a Bone Marrow transplant.
Justin Cilia is an 8 year old boy. Who underwent transplant on June 22nd. He has been sick since he was six weeks old. He has had a few very serious infections. He has been in and out of the hospital on numerous occasions. He was diagnosed in 2002 with an immune deficiency. He started gammaglobulin infusions a.k.a. IVIG in October of 2002. He has received IVIG monthly at CPMC. It was not until about two years ago that Justin’s condition continued to get worse. He was diagnosed with auto-immune hemolytic anemia. He was given Rituxan to treat the disease. This was after much reseach with other Dr. The next year he developed a micro-bacteria infection that but him in the hospital for a few months. He had treatment of antibiotics for over 6 months. That is when we decided to contact Dr. Bleesing at Childrens’ Hospital. After we met with Dr. Bleesing in June 2006. He did a lot of additional testing on Justin. He also contacted the NIH in Baltimore. That is when Justin was Diagnosed with NEMO. The only cure for NEMO is a Bone Marrow transplant.
