Primary Immunodeficiency Archive

Dr. Orange’s article published back in June 2002 at the Journal of Clinical Investigation has been cited twenty eight times according to Google Scholar. The title of the article was Deficient natural killer cell cytotoxicity in patients with IKK-gamma/NEMO mutations. Andy’s cells were used for that article. Find all

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Primary immune deficiency is sort of like cancer. It’s the immune system that allows the uncontrolled, abnormal growth of cells.To prevent cancer you need a good immune system, no doubt about it. Cancer as a immune deficiency sounds coherent. I ran this experiment today, I did a Google search

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Following the NY Times article “When Health Insurance Is Not a Safeguard“, here’s very good advice regarding gamma globulin infusions I received via email. Gammaglobulin prices vary greatly depending on how much insurance pays, the number of grams used and the place of the infusion. The least expensive option

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Families with children that need treatments for primary immune deficiency have to cover a lot of medical bills. A huge amount of money. Gammaglobulin infusions can cost up to $12,000 dollars, this includes the room fee & all the labs taken during the visit. Andy used to get gammaglobulin

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Subscribe to the Andy Blog and receive an email notifications to alert you of a new post. When you subscribe you will receive email notification alerts when any of the categories at The Andy Blog is updated. The Andy Blog has the following categories, Andy’s Update – News about

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Instead of growth they measure activity to identify bacteria faster. The University of Waterloo claims to know how to speed up the process to identify and determine the most efective antibiotics to use for a bacterial infection. Instead of waiting 24 to 48 hours for something to grow they

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Dr. Fischer is an expert in genetic therapy. My first message to Dr. Fischer was in October 23, 2001, he answered a day later October 24, 2001. I found this article about a speech he gave at Children’s Hospital Los Angeles and it has interesting information. Source: Childrens Hospital

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A month ago I published here the story about Jack Hagelin from New Jersey who also has a NEMO mutation. Since then I’ve been in contact with Roy and Charlotte, Jack’s parents and I offered them a website for Jack hosted on a internet server thanks to the generosity

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People from New York, New Jersey, Pennsylvania and Maryland have MAPIN, Middle Atlantic Primary Immunodeficiency Network. MAPIN offers direction during the journey with primary immunodeficiency. Dr. Jordan Orange and Katie Orange are supporting MAPIN. Visit MAPIN website here.

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Its official, Dr. Geha and his team of Immunologists at Children’s Hospital Boston found the genetic roots of another immune deficiency. The gene is called TACI and its related to IgA deficiency. Children with TACI have low levels of immunoglobulin A (IgA), immunoglobulin G (IgG) or both. Dr. Geha

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