Primary Immunodeficiency Archive
I found this clinical research protocol at the NIH website today. They plan to enroll 600 people with x-linked hyper IgM Syndrome (CD40L gene) and NEMO gene mutations. Six hundred sounds like a big number… Study Type: Observational Study Design: Natural History Further study details as provided by National
Children with primary immune deficiency receive intravenous immunoglobulin (IVIG) also known as gammaglobulin infusions frequently. IVIG is obtained from blood donors and it contains antibodies from the donors functioning immune system. Antibodies help fight infections… Andy used to receive IVIG every two to three weeks. Turns out that many
According to this article Jim Boonyaratanakornkit, a medical student from The University of California San Francisco found a gravity-dependent immune deficiency. The article mentions that space crews have an increased susceptibility to infection… I wonder how do bacteria and viruses respond to zero gravity? The goal of Jim’s project
I received the comments from Fred Modell to the Vivaglobin product from ZLB Behring via The Philadelphia Inquirer. “It’s very good news for patients because there is a choice available to treating physicians,” said Fred Modell, president of the New York-based Jeffrey Modell Foundation, started by Modell and his
Jordan S Orange and Raquel P. Deering just published a new article at the Clinical Vaccine Immunology journal where they talk about a test to evaluate primary immune deficiencies like NEMO where cells are unable to recognize certain disease-producing micro-organisms. Just imagine! Andy had to deal with infections for