Quotes from blogs of parents of boys with NEMO

This from Jack’s Dad:

Yesterday, was the hardest and most difficult day of our lives. Charlotte, Christina and I laid Jack to rest. Jack fought a long and hard battle in his 4 1/2 years on this earth. He was the bravest, strongest man I knew. Jack was laid to rest with full firemen’s honors. The show of support from family and friends was incrediblle. In his short time with us he touched the hearts of many. I have been receiving email and comments on this page from so many people far and wide. Jack had an effect worldwide. Dr. Jordan Orange spoke at Jack’s funeral and vowed to continue to work for a cure with Jack’s inspiration.


More at www.cure4jack.org
This from Simon’s Mom:

Believe me I knew nothing about the immune system before Simon and to look at counts and either get happy or worried is something I dread. We all walk around getting colds and things and don’t even think of how our systems work to fight them off but when confronted with a situation like this every number sets the mood. Today our platelets are down.

More at cure4simon.org
This from Giovanni’s Dad:

His vitals are all good but his chest is heaving too much for my comfort. He simply looks uncomfortable, weak, and helpless… A grown man having survived 17 1/2 years of hell through the bowels of two prison systems and I’m scared for my son’s life. I’d beg on my hands and knees,sell my soul, any and every temporal possession I own to take his place if anyone could deliver me there.


More at helpgiovanniguglielmo.org
This from JT’s Dad:

I think it’s a combination of an intensive medical routine, fewer hours available for sleep each night, and JT’s lingering symptoms. Whatever it is, JT and I are both tired. Really tired. And I think the cumulative effect of the last six months is finally adding up. Jodi prayed tonight that God would give us the strength to finish the race strong.


More at www.cure4treebeard.org

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