Mary Kaye Richter Speaks at Launch of Mexican Association of Ectodermal Dysplasias
NFED’s executive director, Mary K. Richter, spoke at the launch of Mexican Association of Ectodermal Dysplasias “Mariana” (Asociacion Mexicana de Displasia Ectodermica) on April 30th in Toluca, Mexico. She wished the organization well and gave some advice to Karla Carmona Prantl who founded the organization. She and her husband, Alejandro, have a daughter, Mariana, who is affected by hypohidrotic ectodermal dysplasia, and a son, Alejandro.
Mary Kaye said, “On behalf of more than 5,000 families in 70 countries, I want to congratulate Karla on this extraordinary day celebrating the creation of a support organization for families affected by ectodermal dysplasia syndromes throughout Mexico….the Asociacion Mexicana de Displasia Ectodeermica…My wish for Karla is the courage to struggle on when times are difficult, the wisdom to know what to do and when, the patience and understanding to know that this is not a daylong journey but one of years and the support, assistance and love from her family, friends and anyone who can help her in any way possible. With all of that, success will be yours………but more importantly individuals in Mexico affected by ectodermal dyplasia will live fuller, happier, healthier and more successful lives.”
