Family & Friends Archive

04 June 2008   Finding NEMO’s Happy Ending   A young boy has reputedly become the first child in the UK to be cured of a rare genetic illness.   Rhys Harris, 7, from Newbridge, south Wales, has survived treatment, which has given him a new immune system. Rhys had to endure living in

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  From his Dad blog: Saturday 6:30: Giovanni is coming strong: The vent is off tomorrow. He’s still sedated but further taking command of his respiratory system, his vent numbers ranging from high 5’s and over 10, and that’s enough to remove the vent. His femoral line is being pulled, his cultures are negatve ruling out any

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From Giovanni’s Dad blog: Giovanni is once again in a struggle for life, yesterday was yet another battle he has fought in his war for life and I can only hope that the master of his destiny is friend and not foe. Giovanni is currently stable but he is

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Giovanni is a boy with NEMO from New Hampshire, he had his transplant 1 year ago. This from Giovanni’s Dad blog: Giovanni is still on the ventilator, and the RSV has spread into his right lung taking its course. Giovanni’s heart is spiking to 174, and the team feels

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Coner is 220 days post transplant. The following from Conner’s Mom Blog: We’ve learned that Conner’s restrictions or precautions have essentially been lifted and as far as his immune system is concerned he has recovered from his transplant! What an incredible coincidence that Conner’s recovery has come to light during

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Fight against ‘Bubble Boy’ syndrome Monday, January 28th 2008, 4:00 AM Vicki and Fred Modell want to spare others their pain. Through the New York couple’s efforts, hundreds of thousands of newborn children around the world will be screened for Severe Combined Immune Deficiency (SCID), or “Bubble Boy” syndrome.

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Why parents can’t stop cuddling little Rhys Jean Parry, South Wales Echo A YEAR ago Rhys Harris’ family dared not think about 2008. Each and every day was a fight for little Rhys, as he battled with a rare genetic condition called Nemo, which attacks the immune system. Even

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By DOROTHY SCHNEIDER Even before the holiday season, 13-year-old Conner Smith was feeling a little like George Bailey at the end of the classic film It’s a Wonderful Life. “He had lots of friends who showed him how much they cared about him,” Conner said. “Our family and friends

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by Nathan Bevan, Wales On Sunday IT’S the Christmas they thought he’d never see. This time last December the parents of little Rhys Harris were told that because of an ultra-rare genetic illness their son would have less than a year to live. But now the courageous six-year-old from

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    by Madeleine Brindley, Western Mail A SIX-YEAR-OLD boy has left hospital less than two months after receiving a life-saving bone marrow transplant. Rhys Harris, from Newbridge, was discharged on Saturday after living in a “bubble” to protect his new immune system. His family – parents Kevin and

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