This is what I wrote 1095 days ago:

Doing well. We’re on day -6. Six days left until Andy receives Sofia’s cells. Andy’s weight today was 17.3 kg. He’s still constipated, we havent seen any stool in 5 days, he got two more doses of Miralax (website). He’s still drinking his Pediatric EO28 Formula but with more nausea. He received a blood transfusion at 2:00 am in the morning. His hematocrit today is 38, up from 24 yesterday; his cheeks look red. Andy has received 15 doses of chemo (Busulfan), he had more nausea today. There’s 1 more dose of Busulfan to go tonight at 12:00 am, tomorrow he will rest and on Monday he gets the other chemo for 4 more days. His ANC (Absolute Neutrophil Count) today is 1,680. Yesterday it was 2,220. He took a bath on the bathroom sink, his central line dressing and site look OK. This is our 34th consecutive day in the hospital. I’ve learned intresting things about myself in the last 34 days, for example now I know that I like to shower on 37 degrees centigrade temperature water (there’s a thermostat on the hallway bathroom shower). Both grandmas are here. Lupita’>Lupita spent the day with Sofia and Marilu’>Marilu with Andy. This is a picture of some of the medications Andy receives in the morning through his stomach:

 

Nurses at the Stem Cell Transplant Unit at Children’s 6W take extraordinary good care of Andy. This is undoubtedly the best place in the world where he could be, and we’re very fortunate for that. Nurses know about every single detail regarding Andy’s care. There are at least 13 different types of medications that he gets during the day and nurses handle them without any problem. Some of them are intravenous and others go through his stomach. Names of the nurses are listed on this blog, ‘Nurse of the Day’ and ‘Nurse of the Night’, they’re on 12 hour shifts. ATF