Hanging in there. We’re on day -3. Three more days for DAY ZERO. His ANC today was 2,500, a little higher than yesterday. His White Blood Cell Count was 4.35. Andy is incredibly patient and thanks to his patience he will win the battle against primary immune deficiency. He cooperates with doctors, nurses, clinical assistants. He also has a very high pain and discomfort tolerance which can sometimes trick anyone who doesn’t know him well. We didn’t sleep much yesterday, he constantly woke up because he needed to go to the bathroom. The constipation medications are starting to help but only with the pushing part. And besides that he’s getting a lot of IV fluids that make him pee a lot. Last night I was worried about this 8 day constipation. This is what I was thinking at 4:00 am in the morning: I think that the main cause is the calcium he’s getting to cover the Foscarnet side effect. I also have happy thoughts that maybe his colitis is cured with the chemo. But we rather “hope for the best and act for the worst”. We’re trying with Myralax and Senna with no results. I’m worried because we’re expecting the low blood counts soon and I don’t want him with low platelets and an intestinal occlusion. Andy’s weight today was 17.8 kg. Dr. Nicholas Haining, fellows and residents came into the room in the morning at around 9:00 am. Dr. Haining ordered some x-rays of his stomach; we talked about intravenous (IV) calcium. Turns out that IV calcium is tricky but he needs the calcium due to Foscarnet. The x-ray trip to the 2nd floor was a major event. First time he leaves room 613 in 7 days. He had to wear a mask to leave the room and go take the “picture”. Andy doesn’t like to wear hospital masks, so we used his Power Rangers mask (red) and that worked. Andy received the second dose of cyclophosphamide at around 10:30 am. When the chemo ended he fell asleep for a while, he was not feeling well. He took a bath in the afternoon at around 6:00 pm. He was joking with Paulina and Grandma Marilu after his shower. We ask you to keep us on your prayers. Chemo should only make way for new cells. The new cells should engraft rapidly and give Andy a new immune system and his chance to live to be an adult. No CMV for at least 140 more days. ATF