A month ago I published here the story about Jack Hagelin from New Jersey who also has a NEMO mutation. Since then I’ve been in contact with Roy and Charlotte, Jack’s parents and I offered them a website for Jack hosted on a internet server thanks to the generosity of the company I work for (Ekonom/Ekomercio/Ekofon).
Dr. Jordan Orange is responsible for finding Jack’s NEMO mutation (search this blog for articles related to Dr. Jordan Orange here).
Jack is having a stem cell transplant in January 2006, he’s lucky to have a compatible donor. In the meantime Roy and Charlotte are raising money to cover the incredible amount of medical bills they are and will be receiving.
Help find a CURE 4 JACK!
And leave a message at Jack’s new guestbook.