Primary Immunodeficiency
Pope talks about Dignitas Personae
Here’s the news I received regarding the Pope. I can speak for families like mine that face life threatening decisions and depend on world changing biomedical research. I’ve seeked for the truth and respecfully disagree with most of the content of the Dignitas Personae document. Amen
The Immune Attack Computer Game
From the Federation of American Scientists Website
Viral infection video
Transfer of Mother’s Cells Molds Baby’s Immunity via NY Times
Transfer of Mother’s Cells Molds Baby’s Immunity By AMANDA SCHAFFER Published: February 2, 2009 Researchers have long wondered how pregnant women might shape their fetuses’ development — by protecting them against later disease, perhaps, or instilling an appreciation of Mozart. Now a group in California has discovered a surprising new mechanism by which women train…
NECN interview – CHB Orphan disease center
(Ally Donnelly, NECN: Boston, MA) – A Boston hospital has received a grant to establish the world’s first-ever center to study orphan diseases. An orphan disease is any disease or disorder affecting less than 200,000 people in the United States. Because the disorders affect so few, researchers have a difficult time getting government or private…
Procalcitonin – a faster way to identify life threatening infections
Cool! A faster way to identify life threatening infections instead of having to wait for 24, 84 or 72 hours for a culture to come back. New test could help catch serious infections in babiesBlood test may spare infants invasive diagnostic tests and antibioticsBoston, MA–A simple blood test may help detect serious bacterial infections (SBIs)…
Maura & Anne Marie at Andy’s school
Maura & Anne Marie are nurses at Six West, the stem cell transplant unit at Children’s Hospital Boston. They visited Andy’s school last Tuesday March 11 to talk to his classmates about his transplant. It was a great presentation. Thank you Maura & Anne Marie! Andy feels more confident. Andy’s teacher reminded me that I’m…
Fight against ‘Bubble Boy’ syndrome @ Daily News
Fight against ‘Bubble Boy’ syndrome Monday, January 28th 2008, 4:00 AM Vicki and Fred Modell want to spare others their pain. Through the New York couple’s efforts, hundreds of thousands of newborn children around the world will be screened for Severe Combined Immune Deficiency (SCID), or “Bubble Boy” syndrome. SCID has many forms but virtually…
Spirit of Giving – Sister Savior – Stem Cell Research
SISTER, SAVIOR By Kate Kruschwitz Children’s Immunology chief Raif Geha, MD, and gastroenterologist Samuel Nurko, MD, MPH, struggled to bring Andy’s infections under control. Meanwhile, Jordan Orange, MD, PhD, an immuno-genetics specialist, searched for clues to Andy’s condition. Orange was conducting research on the immune system’s master switch, the gene NF-kB Essential Modulator, or NEMO….