Skip to content

Andy & Sofia

Menu
  • The book
  • What is NEMO?
    • Clinical Presentation of NEMO
    • Diagnosis of NEMO
    • Therapy for NEMO
    • Expectations for the Patient
  • From Andy’s Perspective
    • Finding Nemo
    • Some of my heroes
    • Good things in the bad
  • Resources
  • Photos
  • Talks
  • Contact Us
  • Blog
Menu

Hospitals

Dance Party Part II

Posted on May 20, 2006 by Andres Trevino

This video was taken January 9th, 2005 at Six West the stem cell transplant unit at Children’s Hospital Boston. This is how Andy received his meds…

Share this:

  • Tweet
Read more

Six West Dance Party Part I of many..

Posted on May 17, 2006 by Andres Trevino

This is what I was talking about. This video was taken January 17th. 2005 at the stem cell transplant unit Children’s Hospital Boston at 2:25:04 AM.

Share this:

  • Tweet
Read more

Introduction to Six West – Part 2

Posted on May 13, 2006 by Andres Trevino

Share this:

  • Tweet
Read more

Introduction to Six West video

Posted on May 11, 2006 by Andres Trevino

Also available here.

Share this:

  • Tweet
Read more

The Pediatric Patient and Family Advisory Council at Dana-Farber and Children’s Hospital Boston

Posted on May 11, 2006 by Andres Trevino

Ana Paulina and Andres Treviño Photo of Ana Paulina and Andres Treviño We joined the PFFAC in April 2005, and represent two types of minorities at Dana-Farber and Children’s Hospital: Spanish-speaking families and patients with rare diseases. Our first child, Andy Treviño, was born on May 15, 1999. Only 48 hours into his life, Andy…

Share this:

  • Tweet
Read more

Clinical protocol at the NIH for NEMO

Posted on February 27, 2006 by Andres Trevino

I found this clinical research protocol at the NIH website today. They plan to enroll 600 people with x-linked hyper IgM Syndrome (CD40L gene) and NEMO gene mutations. Six hundred sounds like a big number… Study Type: Observational Study Design: Natural History Further study details as provided by National Institutes of Health Clinical Center (CC):…

Share this:

  • Tweet
Read more

Former volunteer guilty!

Posted on February 23, 2006 by Andres Trevino

The man that was arrested at Children’s Hospital cought inside the ICU will spend 30 days in jail according to CBS News. Crazy! What the hell was he doing at the ICU?

Share this:

  • Tweet
Read more

Eating at hospitals may be bad for your health @ Boston Globe

Posted on February 13, 2006 by Andres Trevino

I received this article from Liz Kowalczyk / Boston Globe. She reports that Children’s Hospital Boston serves its french fries at the cafeteria with 1.9 grams of trans fat. While we were there.. I ate salads and pizza.. no fries.. Eating at hospitals may be bad for your health By Liz Kowalczyk | February 13,…

Share this:

  • Tweet
Read more

Former volunteer arrested at Children’s @ CBS News

Posted on February 6, 2006 by Andres Trevino

A man arrested at Children’s caught inside the ICU….And he used to be a volunteer! WOW… CBS4) BOSTON A Malden man, arrested in December for allegedly dropping his pants inside a New Hampshire mall, is in trouble with the law again. Boston Police arrested 52-year-old Richard Mullen Sunday morning after he was caught inside the…

Share this:

  • Tweet
Read more

The Josie King Foundation

Posted on January 25, 2006 by Andres Trevino

Josie King was a 18 month old girl who died as a result of hospital errors. Through the creation of a patient safety program, the King’s hope to help prevent this from ever happening to another child. This taken from www.josieking.org: It is estimated that as many as 98,000 Americans die each year from preventable…

Share this:

  • Tweet
Read more
  • Previous
  • 1
  • 2
  • 3
  • 4
  • 5
  • 6
  • …
  • 31
  • Next
  • Analysis of Comments to Sofia’s DoS interview
  • “Resilience is not about being tough; its about being alive. If you are alive, you will face challenges. How you respond to them is what matters.”
  • The highest form of wisdom is kindness
  • “When you are good to others, you are best to yourself” -Benjamin Franklin
  • “Success is not final; failure is not fatal: it is the courage to continue that counts.” -Winston Churchill.
  • + English
  • + Español
  • Andy's Update
  • Autographs
  • Book
  • Bugs
  • Ectodermal Dysplasia
  • Family & Friends
  • Fundraising & Gifts
  • Gadgets
  • Glossary
  • Hospitals
  • Invitro Fertilization
  • Marathon
  • Medications
  • NEMO Gene
  • News & Blogs
  • Other
  • PGD
  • Phrases
  • Pictures
  • Primary Immunodeficiency
  • Savior Siblings – PGD
  • School
  • Sofia's Update
  • Sports
  • Stem Cell Transplant
  • Stem Cells
  • Uncategorized

Contact us

andy@andy.org.mx
© 2025 Andy & Sofia | Powered by Minimalist Blog WordPress Theme