Pictures here. We walked with ‘Hanahs Hopefuls’ in memory of Hanah Rose Mc Leish, along side Tracy & Rich Mc Leish and Jen Spencer (Andy’s nurse) Abuela Marilu walked 7 miles (1 mile more to the car)!
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Miles for Miracles Walk
We’re walking for Children’s Hospital Boston tomorrow! You can sponsor Andy for tomorrows WALK here. This year we decided to join a fundraising team, the ‘Hanah’s Hopefuls‘ and our team captains are Tracy & Rich Mc Leish. Here’s Hanah, We met Tracy & Rich at Six West, the stem cell transplant unit at Children’s Hospital….
Switzerland aproves PGD @ Swissinfo
House or Representatives has come out in favour of lifting the ban on the screening of human embryos for genetic diseases. …it is time Switzerland lifted the ban on PGD. The procedure is permitted in many European countries including Britain, Denmark, Norway, France and Spain. “We see strong reasons against, but that does not mean…
DREAM MAGAZINE
It’s here! The title: “LITTLE SISTER BIG GIFT – How Sofía Treviños stem cells are helping heal her brother” Matt Cyr, Dream Magazine Editor, just sent me an email letting me know that the magazine arrived today and will be available tomorrow. Sofía and Andy are on the cover! Here’s a picture of the photographer…
Time magazine birthday covers for the Trevino family
Sofía “How To End Poverty. Eight million peopledie each year because they are too poor to stay alive. A provocative on how we can save them.” Andy – First Birthday “Growing Up Online. Today’s kids dwell in a world of computers and video games. Here’s how parents can help them make the right choices.” Andy…
NEPIN Boston Harbor Cruise
NEPIN stands for The New England Primary Immunodeficiency Network. A group of family and friends of patients with Primary Immunodeficiencies. An independent non-profit organization formed under the umbrella of the Jeffrey Modell Foundation. Works in cooperation with the Immune Deficiency Foundation in the New England Area. The Graziano family organize NEPIN events and they educate…
HOME ALONE first 24 hours
Paulina & Sofia went to Alfredo & Rebeca wedding in Torreon, Mexico. They will be away until around June 25th. Andy is not allowed to travel on an airplane yet because he has a brand new immune system. Andy and I are home alone… Two hours after Sofia & Paulina left to the airport yesterday…
David Baltimore awarded honorary degree at Harvard
David Baltimore (Nobel Prize 1975) discovered the NEMO gene in 1980. NEMO comes from the words Nuclear Factor Kappa B Essential Modifier. In part thanks to David Baltimore we found Andy’s diagnosis and we thank him for that. Here’s what Harvard wrote about David Baltimore: One of the world’s most distinguished and influential biologists, David…
Hebrew University researcher develops compounds to control bacteria @ MedGadget
I found this article at MedGadget blog today about a researcher at the Hebrew University of Jerusalem that found a way to control bacterial activity without antibiotics, he interferes with their communication process. Only recently has it been discovered that the bacteria assembled in biofilms have a network of communication between them called “quorum sensing,”…
Should science reshape the human race? @ The Age
Here’s what they are talking about in Australia regarding PGD. Do parents have a moral obligation to create perfect babies? And are we ready for a future in which only the “best” are born? Amanda Dunn and Tom Noble consider the argument. It’s an idea that’s as discomforting as it is intriguing: that one day,…