I received this message today from the NFED. The National Foundation for Ectodermal Dysplasias has learned of a little boy affected by Hypohidrotic Ectodermal Dysplasia who is looking for a forever family. Alex is 5 years old and has been in a China orphanage since he was 3 years old. He appears to be a…
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Dr. George Q. Daley Senate testimony regarding embryonic stem cell research
To the Committee of Health, Education, Labor, and Pensions January 19, 2007 Stem cells come in many varieties. Even the term “stem cell” is a very general term. It defines a generic category of cells that has many members with different properties. It’s about as specific as the category “seed.” Seeds of all types share…
Boston Marathon Acceptance Card
111th Running – April 16th, 2007
Children’s Marathon Team Fun Facts
This year is the largest team ever with 172 runners With 37 “qualified” runners meaning: the runners have either a qualifying time or have a number through an outside source and wanted to run for Children’s to raise money for a great cause There are 93 patient partners (Andy included). To date the team has…
15 miles!
I ran 15 miles today. Here is the route. My fundraising page: www.42km.org My brother Victor is also running: www.vic4andy.com Mark Porter is also running: www.mark4andy.com
Sofia and her new puppy!
Andy and his new puppy!
Her name is Pebbles.
Mother or Nurse?
This from Paulina: Taking care of my ill baby has been the most challenging job I have ever had and I will ever have too. My son was born with a primary immunodeficiency which was a big surprise for all the family and a long journey to find it and treat it the right way….
6 x HB Hill
I ran 6 x Heart Break Hill today. www.42km.org
Giovanni has NEMO
I heard about Giovanni in the news a couple of weeks ago.. And I received an email today from Michael Guglielmo, the father of Baby Giovanni who was just diagnosed with NEMO yesterday. We talked on the phone, he’s looking for information about NEMO, he said he’s had a hard time finding information about the…