Skip to content

Andy & Sofia

Menu
  • The book
  • What is NEMO?
    • Clinical Presentation of NEMO
    • Diagnosis of NEMO
    • Therapy for NEMO
    • Expectations for the Patient
  • From Andy’s Perspective
    • Finding Nemo
    • Some of my heroes
    • Good things in the bad
  • Resources
  • Photos
  • Talks
  • Contact Us
  • Blog
Menu

Blog

Marathon fundraising letter from Mark Porter

Posted on April 3, 2007 by Andres Trevino

Their Future is in Our Hands March 28, 2007 Dear Friends and Family I am writing to ask for your support of Children’s Hospital Boston. As most of you know, I am in remission from cancer. The title of this letter is very much in my mind daily because if the people of yesterday had…

Share this:

  • Tweet
Read more

Charlotte & Roy Hagelin – Our heartfelt sympathy

Posted on March 28, 2007 by Andres Trevino

Dear Charlotte and Roy, We want to express our heartfelt sympathy. May the love of family and friends comfort you. Paulina & I wanted you to know that we are grieving with you and thinking of you always. Jack’s battle against the NEMO primary immune deficiency has inspired many and will inspire many more. We…

Share this:

  • Tweet
Read more

Prayers for Jack

Posted on March 27, 2007 by Andres Trevino

Please say a prayer for Jack. Jack had his first transplant a year ago. More about Jack’s story here and here. This from Jack’s mom blog last Saturday: He is still having breathing problems and is still on oxygen. This pneumonia is really kicking his butt. The doctors have been giving him doses of Albumin…

Share this:

  • Tweet
Read more

Pictures – Victor 10K race Mexico City

Posted on March 25, 2007 by Andres Trevino

www.vic4andy.com

Share this:

  • Tweet
Read more

Message from Mark Porter

Posted on March 25, 2007 by Andres Trevino

Good morning lads hope all is well after your 21 miles yesterday i completed it and it was a lot easier than i had expected or should i say that it was not easy but it was not as difficult as i had feared being that i have had a bad year training for this…

Share this:

  • Tweet
Read more

Pictures from CBS News interview

Posted on March 25, 2007 by Andres Trevino

Share this:

  • Tweet
Read more

21 miles!

Posted on March 25, 2007 by Andres Trevino

Thirty five times around the sun and this is the first time that I run (and also walk for a little while) for 21 miles. Twenty one miles. T w e n t y o n e m i l e s ! Unbelievable. Thats 33.79 km. Thirty three point seventy nine kilometers. I managed…

Share this:

  • Tweet
Read more

The Three Amigos

Posted on March 22, 2007 by Andres Trevino

Share this:

  • Tweet
Read more

Simon still vomiting

Posted on March 20, 2007 by Andres Trevino

This from Simon’s mom: We thank God everyday for the engraftment of 99% and keep praying it holds strong and steady. We had some of Simons vomitting issues come on strong the last two days with vomitting to the point of dry gagging while I hold him over the sink first thing in the morning….

Share this:

  • Tweet
Read more

JT no fever

Posted on March 20, 2007 by Andres Trevino

We’re hoping for no fevers for JT and the calcium issue to resolve soon. This from cure4treebeard.org: Tomorrow is another big day. We need for JT to tolerate his feeds and be completely fever-free. We also need the calcium numbers to stay down on their own. If all of that happens, we may possibly be…

Share this:

  • Tweet
Read more
  • Previous
  • 1
  • …
  • 36
  • 37
  • 38
  • 39
  • 40
  • 41
  • 42
  • …
  • 134
  • Next
  • Analysis of Comments to Sofia’s DoS interview
  • “Resilience is not about being tough; its about being alive. If you are alive, you will face challenges. How you respond to them is what matters.”
  • The highest form of wisdom is kindness
  • “When you are good to others, you are best to yourself” -Benjamin Franklin
  • “Success is not final; failure is not fatal: it is the courage to continue that counts.” -Winston Churchill.
  • + English
  • + Español
  • Andy's Update
  • Autographs
  • Book
  • Bugs
  • Ectodermal Dysplasia
  • Family & Friends
  • Fundraising & Gifts
  • Gadgets
  • Glossary
  • Hospitals
  • Invitro Fertilization
  • Marathon
  • Medications
  • NEMO Gene
  • News & Blogs
  • Other
  • PGD
  • Phrases
  • Pictures
  • Primary Immunodeficiency
  • Savior Siblings – PGD
  • School
  • Sofia's Update
  • Sports
  • Stem Cell Transplant
  • Stem Cells
  • Uncategorized

Contact us

andy@andy.org.mx
© 2025 Andy & Sofia | Powered by Minimalist Blog WordPress Theme