Article published yesterday at The Journal of Clinical Investigation (where Dr. Orange published the NEMO article about Andy) from Dr. Alain Fischer regarding gene therapy. I called Dr. Fischer once about 5 years ago and he told me he was not ready to use gene therapy to treat children with NEMO. In this article he…
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Dr. Jordan S. Orange at the cover of the IDF Newsletter
What a great surprise to see Dr. Orange at the cover of The National Newsletter of the Immune Deficiency Foundation. It means that the IDF is doing things right.
Download House – Help me publish my book
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Dr. George Q. Daley @ The Charlie Rose Show
Great program! Its all about the possibility! My notes regarding stem cell research talk by Sir Paul Nurse, George Daley, Doug Melton, Larry Goldstein, Story Landis at the Charlie Rose program: “The aim of all this is to revolutionize medical treatment and understanding of disease” “Learn about mechanisms of diseases.” “Develop new therapies.” “Repair degenerative…
Simon 6 months post transplant!
Congratulations! Simon celebrates six months post transplant! This from Simon’s Mom: Celebrate today with us as it marks our six month post transplant on our calendar. We are very blessed to say we have managed to stay home, be together, watch Simons immune system heal and hopefully start to stabalize and stay strong and steady…
Sweden approves embryo screening to save dying siblings
This via de AFP. STOCKHOLM, May 28, 2007 (AFP) – Swedish authorities have granted three families the right to screen embryos to create a child who can be a stem cell donor for a sibling with a deadly illness, officials said on Monday. The Swedish National Board of Health and Welfare has approved the highly-controversial…
The miles for miracles team raised 1.45 million!
For Children’s Hospital Boston WOW
Eight times around the sun!
And what a ride!
This is how I feel about healthcare in Mexico
Cure 4 Rhys
Quest to find Rhys, 6 a bone-marrow donor May 14 2007 by Madeleine Brindley, Western Mail PATIENTS are dying because not enough people have registered as potential bone- marrow donors. Only about 10m people worldwide are registered as potential bone-marrow donors – 60,000 live in Wales. There is also a dire shortage of male donors,…